What is Fleggle-Hammer? Fleggle-Hammer means "pain". I give this credit to my best friend Katie. I Facebook. I was up early, as usual, and took my meds waiting for meds to kick in, so I post, I am tired of saying the word "pain" I need a made up word. My Friend suggested this silly name that means nothing. I loved it. So when I say it I smile and laugh because of how silly it sounds. Trying to turn a negative to a positive. So that is the short history of "FLEGGLE-HAMMER".
I am Monica. I'm 35 years old. I suffers from fibromyalsia. In other words they don't know whats wrong with me. It all started April of 2007. Thought I had the flu. Never went away. Fleggle-hammer intensified and became unbearable. I didn't sleep. I didn't eat. I couldn't even get out of bed. Luckily I was a stay-at-home mom. Unluckily I was a stay-at-home mom. After many doctors, tests, and meds(that made me gain 65 lbs), My family moved. It's 2 years later.
We moved back to our place of birth so I returned to my doctor that we loved. I end up seeing his daughter. She is so young....but she knows her stuff. She finally diagnosed me. She listened to me. We found a new drug "Savella". It seams to be working along with other meds I take and I can live my life pretty mush interrupted. Just at a slower pace. I even started going to the gym and in the last year have lost a total of 37 lbs.
So why am I am blogging now after 3 1/2 years of pain. I had an interesting encounter with a person who suffers from arthritis. This person has suffered since he/she was a teenager. He/she is in her/his forties now. This person apparently was tired of reading my post about my bout with fleggle-hammer. In there opinion I should suck it up and forget about it. I will get nothing from sharing this Fleggle-hammer. I will just get people tired of me and loose my friends. Well as you can probably assume I lost this friend/family member. I thought "NO!" I will not stop. This is what is on my mind. This is what is always on my mind. I clean with this on my mind. I make dinner this is on my mind. I take my kids to school it is on my mind.....well you get it. I know talking about it will not cure my illness. I figure mind over matter..I talk about it...my mind deals and if I blog it...I may help some people out while helping my self out too.
My hope is just that hope. Hope for a test that solidifies the illness and a hope for a cure. My hope mostly lies with the people around us. I want them to acknowledge it. I want people to know that there is not this mass hysteria of people making up this fleggle-hammer. It is very real for those who suffer from it.
My day today good. See improvement. Had some fleggle's here and there but not enough to stop me. As I type my ring finger on my left hand is fleggling. So I consider it a good day.
I am a person of faith. So I end with a prayer for anyone who reads this. Anyone who suffers as I do. I pray that we will find peace.
LOVE IT! I had no idea all of this was going on while you lived here.... shows how much the gossip train travels out to janesville.
ReplyDeleteI hope this becomes a source of help for you sometimes it is good to vent and let the feelings out rather than bottle them up inside. I have a friend here in janesville that has fibro she has flare ups but deals with it fairly good I should try and hook you guys up it might be good to talk
I think that this is great! I look forward to reading more.
ReplyDeletePoohsweetie go back to the post. I asked for alternative names to use instead of pain. Not a very cold. "just forget about it." I was trying to make this negative into a positive. In order to deal. Thats all. That comment was just the staw that broke the camels back. My feeling where hurt. Felt you were trying to shup me up but I just couldn't do that. I would have hoped you would repect that. BTW I didn't say you were a mean person. I said your comments were and have been mean. It just so happens I love you. Did you know that.
ReplyDeleteWill someone help me out here. Poohsweetie, I just can't get through to her.
ReplyDeleteI like it Monica.
ReplyDeleteSo glad I could help you. I hate being so far away and not being there for you.