Don't ask how I came up with this topic lets just say I was moved, but not in a good way, to think about what my family goes through. What are there responses & how this illness can also change their lives.I have to say this has been the hardest to go through, even harder then the pain & fatigue itself.
1st our significant others! Yikes so much to say..... Well they loose who they married... Then one of 2 things happen they leave you! SAD but true. He/she can't handle it & your on your own. If your lucky because this person loves you so, have morals, values & don't believe in checking out when the going gets rough. Ok Babe we r in this together! Yay for you & him/her! CRAP!!!! I say that because duh Thats not it there is the rest of your life or in my case I believe the rest if my existence. One minutes I'm a stay at home SUPER MOM, the next I'm in bed cuz I can't even get out of it & every night it's take-out, left overs, frozen meal or your husband is making Hamburger Helper for the 20th time. The cleaning is not done by you but by your husband but only on his days off because he worked 3 16 hour shifts that week.. Well nothing gets done. Then your trying to deal with each other both feeling helpless, both at times wanting to give up, both snapping at each other, etc. etc. etc! Right? Ok ok not always but sometimes.
Next our precious little people. The extension of ourselves. The best things we can contribute to this crazy world Our children! All I think please God don't let me screw them up. Lets face it this isn't a perfect world not a perfect person exists & we under the best circumstances, as parents, can only do our best. "I CAN'T" is all I seem to say to them a lot! I can't pick you up late please get a ride, I can't go to your game too much sun gives me migraines, I can't go on that school trip cuz I cramp up if I sit to long. Then there are the "Please can u". Please get me my meds, please rotate the laundry, please no friends over today cuz I have a migraine, please stir this cuz my hand & back r cramping etc, etc! They have to grow up so fast with a mom or dad like us... Good in some ways ...but bad because I'm suppose to be the one taking care of them. It hurts to hear your daughter's fear is she will loose u SOON!*tears* I hurts when your son's hopes everyday that this day u will be cured & never speak of pain again.
What-To-Do, What-To-Do? This goes for family member & sufferer!
Don't give up!
Try!
Thank Them!
Love them!
Love yourself!
Communicate(both of you)!
Listen!
There is always a bright side! No don't say no..Yes their is, there always is!
Wish but also Accept what is!
Ask for help!
Give!
Serve!
Rest!
Love, Love,Love, Love,Love, Love,!
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